plus 3, "Stoke is a joke" says mum after week at new unit - Bucks Free Press

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• "Stoke is a joke" says mum after week at new unit - Bucks Free Press
• Baby Sitter Charged With Shaking Boy, 2 - Boston Channel
• Baby P fuels rise in children taken into care - Daily Mail
• 'One horrible second': Campaign expands to prevent Shaken Baby ... - Salt Lake Tribune

"Stoke is a joke" says mum after week at new unit - Bucks Free Press Posted: 31 Oct 2009 07:32 AM PDT "Stoke is a joke" says mum after week at new unit 2:30pm Saturday 31st October 2009 Comments (1) Have your say » A FURIOUS Wycombe mum has branded the new women and baby care centre at Stoke Mandeville Hospital "a joke" - saying staff are over-run and it costs her "a fortune" in travel costs. Amy Evans' baby son has been in the children's ward at the new unit since Friday, October 23, to be treated for croup - a throat infection making it difficult to breathe. Seventeen-month-old Corey-Jack has spent long periods in various hospitals since being born 14 weeks prematurely last year. Miss Evans, from High Wycombe, says up until now she has never had any complaints about his care. She would normally take Corey-Jack to Wycombe Hospital but care for seriously ill children was moved permanently to Stoke Mandeville on October 19. The new centre takes children from all over Bucks, including Milton Keynes. The 24-year-old said: "Stoke is a joke - the staff are all really nice but there just aren't enough of them and they're over-run." "If you needed a doctor or nurse at Wycombe you would ring a buzzer and they would arrive straight away - here they tell you 'in a minute' because there are not enough staff." "I was panicking on the Friday when my son was struggling to breathe and I realised we had to go to Stoke – that just isn't good enough in emergency situations." She complained the children are sharing SATS monitors - machines which monitor oxygen levels in the blood: "I'm trying to get a hand-held monitor at home and they don't even have enough for each child on the ward. "In that time when he's not on the monitor anything could happen and nobody would know - this isn't acceptable for a child with chronic lung disease." Miss Evans, of Pettifer Way in High Wycombe, said it takes her between 40 and 70 minutes to get to the hospital depending on the traffic. It has cost her more than £100 in petrol so far and she cannot claim this back because Stoke Mandeville is now designated as her 'local' hospital. Corey-Jack has been on nebulisers and steroids since Friday to treat the croup but after his condition did not improve a doctor prescribed him adrenaline on Monday evening. Miss Evans said this was not given to Corey-Jack until yesterday morning – after the Bucks Free Press had contacted Buckinghamshire Hospitals NHS Trust. Miss Evans said yesterday: "I was told there was no doctor on the ward to give him the adrenaline and then suddenly this morning I'd never seen so many people. "Some staff have apologised but I shouldn't have to talk to the press to get the treatment that my son needs." She said Corey-Jack had now been given the dose of adrenaline. She expected they would still be at the hospital yesterday but said she was asking to be transferred to John Radcliffe hospital in Oxford. Lee Jones, spokesman for Buckinghamshire Hospitals NHS Trust, said: "We are sorry if Ms Evans is unhappy with any element of care her child has received, we would encourage her to make contact with the Trust to discuss this further. "Our 26-bed children's ward at Stoke Mandeville is double the size of the ward at Wycombe and is fully, and appropriately, staffed for the level of patients we see. "As is normal practice on any ward, doctors may not always be immediately available to see a patient, particularly during the important handover period, but are able to attend straight away if needed. "We also have adequate medical equipment on the ward and patients have access to equipment as and when they require it." Miss Evans has backed the Bucks Free Press' Hand Back Our Hospital campaign saying: "They need to open the Wycombe unit back up – we spent nine weeks there and never had any problems." This content has passed through fivefilters.org.

Baby Sitter Charged With Shaking Boy, 2 - Boston Channel Posted: 31 Oct 2009 04:48 AM PDT POSTED: 7:53 am EDT October 31, 2009 UPDATED: 7:53 am EDT October 31, 2009 This content has passed through fivefilters.org. This posting includes an audio/video/photo media file: Download Now

Baby P fuels rise in children taken into care - Daily Mail Posted: 22 Oct 2009 08:14 PM PDT By Daily Mail Reporter Last updated at 12:52 AM on 23rd October 2009 Neglect: Baby P's mother and her boyfriend were convicted of causing his death The number of children taken into care has risen to unprecedented levels since the Baby P scandal broke, it was revealed. Courts saw a 47.2 per cent jump in cases involving youngsters who were taken out of violent homes in the second quarter of 2009 compared to the same period last year. In June, 784 children were involved in care cases - more than double the number from last June. The figures from the family court guardian service CAFCASS prompted warnings that the extra costs may mean services will not be able to cover families where the risk of violence is lower. The Local Government Association, the umbrella body for councils, said that ' danger signs are emerging that the system designed to protect thousands of children from abuse and neglect could be approaching crisis point.' It added: 'Schemes meant to prevent family break-up and to support children from poorer backgrounds may be sacrificed in order to foot the bill for a larger care population.' Peter Connelly's mother, her boyfriend and his brother were convicted of causing the 17-month-old's death in November 2008. Share this article: This content has passed through fivefilters.org. This posting includes an audio/video/photo media file: Download Now

'One horrible second': Campaign expands to prevent Shaken Baby ... - Salt Lake Tribune Posted: 30 Oct 2009 03:40 PM PDT It was 2 a.m. on a Tuesday when Care Burpee first saw her 9-week-old daughter comatose on a full-size hospital bed, her tiny head wrapped in a turban of white gauze. Tubes strewn everywhere pumped 13 life-saving drugs into her veins. Burpee was confused. Her husband and older son were snoozing peacefully, unharmed, on the floor of an intensive care unit waiting room at Wilford Hall Medical Center in San Antonio. Yet here was her baby Winter, barely clinging to life. A doctor walked in. "We believe your daughter has been shaken," he said. "Does this come as a surprise to you?" An Air Force linguist, Burpee had left her home in San Antonio Sunday night for a week of training in San Angelo, 200 miles away. She left Winter and her son, Aspen, with their father and Burpee's now ex-husband, Jay McKimmy. Frustrated with Winter, who had erupted into fits of crying, McKimmy shook the prematurely born infant and caused head trauma so severe doctors would later describe her brain as "scrambled eggs." There was no coming back from this, they told Burpee. Winter would be lucky to make it through the next 72 hours. If she did, she might live another month -- maybe a year. -- A cultural change » Crying is the No. 1 trigger for child abuse. Faced with an infant's inconsolable wailing, a tired, frustrated parent or caregiver can "lose it for one horrible second of their life," said Marilyn Barr, founder and executive director of the National Center on Shaken Baby Syndrome in Ogden. But what many caregivers don't know: All babies go through a normal developmental phase that is characterized by bouts of crying. If comforting an infant doesn't work -- and sometimes it won't -- an irritated parent's best strategy may be to put their screaming baby safely in a crib and walk away. The "Period of PURPLE Crying," the center's expanding public education effort, hopes to drive a cultural change as profound as the "Back to Sleep" campaign. Since its launch in 1994, the rate of sudden infant death syndrome, or SIDS, has declined by more than 50 percent. Persistent crying begins around two weeks after a baby's birth, peaks in the second month and ends two or three months later, said Ronald Barr, a pediatrician at BC Children's Hospital in Vancouver, Canada, who is an expert on crying. This "distress curve," as he calls it, coincides with at least eight other behavioral and physical changes. Infants' attention to things they see, for instance, increases then decreases in a similar pattern. So does the rate at which their bodies burn calories. The same curve is seen in infants around the world and even other breast-feeding species, including pigs, rats and chimpanzees, said Ronald Barr, who is also director of Developmental Neurosciences and Child Health at the Child and Family Research Institute at the hospital. Barr hopes wide awareness that crying is "just part of how babies are hard-wired" will lessen caregivers' frustration -- and their likelihood of shaking an infant, which has devastating consequences. Babies have weak neck muscles and large, heavy heads. The whiplash of violent shaking can bounce their fragile brains inside their skulls, causing bruising, swelling and bleeding. Their eyes can also be jostled, causing retinal stretching and tearing, which can lead to blindness. An estimated 1,200 to 1,400 babies are shaken in the U.S. each year. About a third of them don't survive, Barr said, and of those who do, 80 percent have permanent brain damage. Since 2003, 14 Utah babies have died from shaking, Salt Lake Tribune homicide records show. -- "He's someone who snapped" » Winter didn't die. Two years after her daughter was shaken, Burpee wrapped the severely brain-damaged girl in a blanket and carried her into a Bexar County District courtroom as an exhibit in McKimmy's week-long trial. "They uncovered the blanket," said Kurt Gransee, his San Antonio defense lawyer. "Then the jury and everybody started crying." It was the worst case of his career, the attorney said. "After that, I said I would never do another one [shaken baby case.] It was horrible." During his 911 call and in court, McKimmy said Winter had stopped breathing and he had shaken her to revive her, Gransee said. Pediatricians had noted in prior exams that Winter may have had sleep apnea. But the state argued McKimmy had a prior history of abuse, and knowingly and intentionally hurt her. The jury, unconvinced, found McKimmy guilty of the lowest possible charge. While the felony was punishable by up to two years behind bars, he instead walked out of court after the judge sentenced him to five years on probation and $10,286.25 in fines. "I cannot condone what he did at all," Burpee said, "but is he a horrible, evil person? No. He's someone who snapped. To me, that's the biggest tragedy of shaken baby. It really, truly can happen to anybody. It doesn't just happen to people who abuse their kids." Raising awarness » Utah is the first state in the country to implement the PURPLE Crying program in all 39 of its birthing hospitals. Staff at each hospital have been trained to deliver an 11-page PURPLE Crying booklet and a 10-minute DVD that teaches parents how to carry, comfort, or walk and talk with a crying baby. Developed by Barr and her husband, Ronald Barr, it recognizes how unnerving a baby's cries can be and how helpless -- and sometimes angry -- this can make parents feel. Now, with the help of a new $100,000 grant from Humana, the center is expanding its outreach to include pediatricians, health departments, home nurse visitors, adoption agencies, foster care facilities and the general public. Prevention remains a challenge. Between 2005 and 2008, the number of shaken baby cases seen in Utah jumped to 48 from 16 -- a 300 percent increase, said Lori Frasier, an associate professor of pediatrics at the University of Utah School of Medicine who culled the numbers for a national database being compiled. Primary Children's Medical Center, along with a handful of other children's hospitals around the country, hope to identify trends by comparing cases. Frasier, who is the director of medical assessment at the Center for Safe and Healthy Families at the hospital, said they are collecting data that includes whether a baby was premature; if it was a part of a multiple birth; and details about abusers. Abuse and economy linked? » The increase in shaken baby cases in Utah, Frasier believes, can in large part be chalked up to a growing population. But something else is going on, too: Parents are more commonly leaving children with caregivers they might not have relied on before -- such as a neighbor or unemployed spouse -- because it's cheaper than full-time daycare. That choice "makes sense -- unless that person (the caregiver) is stressed, or there are other reasons they're not very well equipped to take care of a baby," Frasier said. Anecdotal evidence suggests child abuse cases are rising across the country in response to stress from the depressed economy, she said. A health care economist at the Children's Hospital of Pittsburgh is exploring a possible connection, linking shaken baby cases with zip codes, through which the federal government tracks unemployment. Frasier said many of the cases she sees are rooted in poverty and drug abuse. One father who pleaded guilty to shaking his baby was only 17. Another was an immigrant who was in the country illegally, lost his job and was taking care of three children. "We do see people who don't fit that profile periodically, but we see the majority of them have some types of stress," she said. "I've seen a lot of parents who feel like they need daycare so bad, they might not even know the last name (of their child's caregiver.)" -- "I'll fight with her" » Winter is now 11 years old. Doctors can't say if she is going to live until she's 20, her mother said. They can't say if she'll live until next year. The weak, red-headed little girl functions at the same cognitive level as a 5-month-old infant. She can't eat solid foods, so she is nourished through a stomach tube. She can't sit up or move her arms and legs, and sits hunched in a wheelchair. Her vision is spotty, but her hearing is acute. The tension in her body eases when her mother plays classical music. A familiar voice sometimes elicits a smile. "In Wal-Mart, a little girl from her class came up to her and said, 'Hi, Winter.' And Winter just beamed at this child. I really think she recognized this girl," said Burpee, who eventually remarried and lived in Salt Lake City for nearly six years before relocating to Eagle River, Alaska. When Winter turned 10 years old, "for me, that was an amazing, amazing moment, for her to have lived a decade," she said. But Burpee will be honest: Her daughter's quality of life is poor. Unlike some parents who might aggressively seek therapy for their severely injured child, Burpee prays that Winter will go peacefully. "Winter, give up and go home to Heavenly Father," Burpee has told her daughter. "Let go, honey. It's OK. You've fought this fight a long, long time." But there is something that keeps Winter going. "As long as she wants to fight," Burpee said, "I'll fight with her." lrosetta@sltrib.com   5 » The number of hours, or more, a normal baby can cry in a day 25 to 50 percent » Estimated percent of parents and caregivers unaware of the harm caused by shaking a baby Nearly one-third » Percentage of babies shaken each year who die 80 percent » Percentage of the babies who survive shaking who are left with permanent brain damage. Source» National Center on Shaken Baby Syndrome   New prevention efforts for shaken baby syndrome focus on educating parents about crying in infants, the No. 1 reason babies are shaken. The campaign explains: » Peak of crying. A baby may cry the most at 2 months of age, and then less at 3 to 5 months. U » Unexpected. Crying can come and go, and you won't know why. » Resists soothing. Your baby may not stop crying no matter how hard you try. » Pain-like face. A crying baby may appear to be in pain, even if he or she is not. L » Long-lasting. Crying can last as long as five hours a day, or more. E » A baby may cry more in the late afternoon or evening. And the word "period" empasizes the crying has a beginning -- and an end. Source: National Center on Shaken Baby Syndrome   Lori Frasier, director of medical assessment at the Center for Safe and Healthy Families at Primary Children's Medical Center in Salt Lake City, is one of six doctors in the country who helped write a new American Board of Pediatrics exam for doctors who want to become certified child abuse pediatrics subspecialists. About 230 doctors across the country are expected to sit for the exam, which will be offered for the first time ever this month. The exam covers 1,300 subject areas, ranging from the epidemiology of child abuse to the ins-and-outs of the legal system. Doctors who pass it will be better able to identify and treat victims, Frasier said. "I think it's really important that people understand that we'd like to be out of a job," she said. "I wouldn't have a problem if I had to go back to being a pediatrician and taking care of well babies." -- Lisa Rosetta This content has passed through fivefilters.org.

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